The grieving parents of one-year-old Eleanor Aldred-Owen have spoken out after their daughter’s tragic death, caused by gross neglect at Alder Hey Children’s Hospital. Rachel and Chaz Aldred-Owen described her as the light of their lives, sharing memories of her joyous spirit and the immense love she brought to their family.
Eleanor, from Mold, Wales, was born with bicoronal craniosynostosis, a rare condition where the skull’s sutures fuse prematurely, restricting normal growth. She was diagnosed at just 12 weeks old, needing surgery to relieve the pressure on her brain.
At only one year old, Eleanor underwent surgery on September 29 last year at Alder Hey Children’s Hospital. However, the surgery was marked by complications, and the hospital missed critical opportunities to address them. During an inquest at Gerard Majella Coroner’s Courthouse in Liverpool, it was confirmed that negligence contributed to Eleanor’s untimely death.

"Our Sun Was Taken from Us"
Rachel and Chaz poured their hearts into a painful yet beautiful tribute to Eleanor, describing her as their world and the center of their family. “From the moment she arrived, she became our everything,” they shared. Eleanor was brave, adventurous, and full of life. Although she took longer to learn to walk, once she found her footing, she never stopped exploring.
“She loved to play, run, and climb without fear,” they recalled. Despite her challenges, Eleanor embraced life with a smile so infectious that it brightened every room she marched into—with toys in hand and her tiny feet stomping across the floor.
Her favorite part of the day? Bathtime. “She loved water more than anything,” her parents recounted. Whether splashing around or smiling as she was wrapped in a big towel afterward, Eleanor’s joy was always palpable.
Their family rallied around her, showering her with love and new experiences. She cherished everyone, but mommy, daddy, grandma, and cousin Olivia held a special place in her heart. Her parents lovingly described a little girl who filled their home with laughter, stomped feet, hugs, and song requests like “Wheels on the Bus.”

Coping with a Devastating Loss
Losing Eleanor has left the family heartbroken and struggling with insurmountable grief. “She was wanted, planned, and so deeply loved,” Rachel and Chaz said. “We orbited around her—she was our sun.”
Their immense guilt weighs heavily. “We’re so sorry we couldn’t protect her,” they shared. “She deserved better.” The family describes an all-encompassing sense of loss; the absence of Eleanor’s laughter, her tiny hands tugging at her dad’s beard, her morning smile, and even her little snores has left an irreparable void.
Eleanor’s passing has strengthened the bond within their family, but they miss her every single day. “We miss her laugh, her voice, her pineapple ponytail, her bed hair, and her very presence. Our home is too quiet now.”
A Parent’s Plea for Change
Echoing this pain are calls for accountability from Alder Hey Children’s Hospital. The hospital has since issued an apology, admitting its role in failing Eleanor and her family. “We are heartbroken that we failed Eleanor and her parents,” a spokesperson said. “For that, we are eternally sorry.”
The hospital has vowed to take steps to ensure that no other family endures such heartbreak. However, Rachel and Chaz’s grief underlines the deeper tragedy of a system that fell short when it mattered most. Their pain serves as a stark reminder to strive for better care and accountability within medical institutions.
Remembering Eleanor
Rachel and Chaz’s words are both a tribute and a call to treasure the small, beautiful moments in life. Eleanor’s spirit, her laughter, and her love will forever remain a part of their family.
“Eleanor might no longer be by our side, but she’ll always be part of who we are,” her parents said. “We’ll never forget her.” Their devastating loss is a reminder of how deeply our lives can be touched by those we love, no matter how briefly they’re with us. And for that, we should all strive to honor Eleanor’s memory by cherishing every moment with our loved ones. So, let us learn from this tragedy and work towards creating a better and more accountable healthcare system that prioritizes the well-being of patients above all else. Let us remember Eleanor, and may her legacy live on through the love she shared in her short but meaningful life. Let us never forget her light, which will continue to shine in the hearts of those who knew her forever. Rest in peace, sweet little one. You are deeply missed and always loved.
In Conclusion
The heartbreaking story of baby Eleanor serves as a reminder of the fragility of life and the importance of quality healthcare. It is a call to action for better accountability and improvements within the medical system, as well as a tribute to the precious life that was lost too soon. Let us honor Eleanor’s memory by cherishing our loved ones and working towards a world where every child receives the care and love they deserve. Rest in peace, sweet little one. You will never be forgotten. May your legacy continue to inspire change, love, and hope in others.
Additional Resources
For more information on bicoronal craniosynostosis and ways to support families affected by it, please visit The Children’s Craniofacial Association. And for those coping with the loss of a child, The Compassionate Friends offers support and resources to help navigate through grief. Let us come together to spread awareness, support one another, and make a difference in honor of baby Eleanor. Thank you for taking the time to read her story.
References
- “Failure at every level” – Family’s anger after Alder Hey hospital admits errors led to daughter’s death (Liverpool Echo) https://www.liverpoolecho.co.uk/news/liverpool-news/failure-every-level-familys-anger-21065988
- A hospital has admitted failures led to the death of a baby girl (BBC News) https://www.bbc.com/news/uk-england-merseyside-57748317
- Bicoronal Craniosynostosis (NORD – National Organization for Rare Disorders) https://rarediseases.org/rare-diseases/bicoronal-craniosynostosis/
- Losing a Child: The Compassionate Friends Support Group Offers Help and Hope (HuffPost Life) https://www.huffpost.com/entry/losing-a-child-the-compas_b_1332490